Baby Born With ‘Ghost White’ Condition

Published: February 6, 2014

Baby Born With ‘Ghost White’ Condition, A mom-to-be’s quick thinking helps doctors discover that her newborn had lost about 80 percent of her blood., Ghost White Baby Born Without Any Blood, Jennifer Juarez had a gut feeling that something was wrong when her baby, who had kicked up to 10 times in a half hour during the latter part of her pregnancy, suddenly went still.

Hope was delivered three weeks early in December 2013 by emergency cesarean section, but she was so pale at birth that when doctors tried to prick her foot to measure oxygen levels, they could barely get a drop of blood.

About 80 percent of her blood had drained from her body due to a fetal-maternal hemorrhage.

“When they first pulled her out, she looked perfectly fine,” said Juarez, 27, of Fountain Valley, Calif. “But she was ghost white. She was breathing like a normal baby, but she had no color to her–not even pink.”

Hope, who was 6 pounds, 2 ounces, had a hemoglobin level of 3.8; an average baby should be between 10 and 15, according to doctors.

So-called “ghost white babies” are rare, and those that do not die in utero or are still born, can have neurological damage, according to the National Institutes of Health. The biggest signal of fetal-maternal hemorrhage is decreased fetal activity.

But Hope was lucky because of her mother’s instinct, according to Dr. Marielle Nguyen, a neonatologist at Kaiser Permanente, Irvine Medical Center, where Hope was born. She said all indications are that the baby will have no problems.

“We have seen this, but not often,” said Nguyen. “In Hope’s case, her outcome was beautiful because it was the classic textbook case they tell you about. The mom knew right away that she had a clue something was wrong. She couldn’t feel the baby move. And she came in right away and we delivered the baby. If we had waited any longer, the outcome would have been different.”

Nguyen said she didn’t know what happened to cause the fetal-maternal hemorrhage. Sometimes a trauma to a pregnant woman’s abdomen or a car or motorcycle accident can cause the placenta to separate from the uterine wall.

“A lot of times it’s spontaneous,” she said. “In a normal pregnancy the baby loses a little bit of blood, but it’s rare to lose more. When she came out, she had lost so much it was difficult to draw any blood from her.”

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